Results of regional evaluation of MyLifeTool

Posted on December 8, 2023

In 2021 we were awarded funding from the National Institute for Health and Care Research (NIHR) Applied Research Collaboration (ARC) North East and North Cumbria (NENC) to conduct a regional evaluation of MyLifeTool in partnership with psychology academics at Teesside University.  The project used a participatory action research (PAR) approach, where eight people living with...

Read more ›

Download our Patient Charter for people with long-term conditions

Posted on December 8, 2023

Our wonderful team of people living long-term conditions, have developed a Patient Charter for organisations to use to highlight key principles to support people living with long-term conditions.  Please consider signing our Pledge to support people with long-term conditions and display the Patient Charter where appropriate.

Read more ›

Summer Neuro Bulletin available now!

Posted on July 10, 2023

A round-up of local, regional and National news to support people with any neurological condition or disability. Neuro Key Bulletin – Summer 23

Read more ›

TEWV Resilience Fund Report March 2022

Posted on April 8, 2022

Read our report for the TEWV Resilience Fund, in collaboration with the FASD Network UK, examining the challenges faced by families living with neurodevelopmental conditions.  

Read more ›

Open Door booklet focusing on Dystonia

Posted on February 27, 2022

We are proud to launch our latest “Open Door” booklet focusing on living with Dystonia, developed in partnership with Adder.  

Read more ›

Neurodevelopmental Conditions “Open Door” booklet now published

Posted on April 15, 2021

We are delighted to announce another addition to our “Open Door” series of learning tools.  The latest booklet includes real life narratives of experiences of adults with or parent caregivers supporting people with a neurodevelopmental condition.  

Read more ›

Activity sheets

Posted on June 12, 2020

This week we have launched our new programme of creative self-management support for people with neurological conditions and their carers and family members.  Every one to two weeks we will post a new activity sheet with simple ideas/activities for people to try out.  These activities can help people reflect on their self-management journey or their...

Read more ›

Carers Week, 8th June 2020

Posted on June 6, 2020

Engaging with patients and carers has always been at the core of our work.  We deliver multi-neuro peer support to include carers, to ensure people have access to informed support and information to help the partnership of care for people with a neurological disorder. This Carers Week, Middlesbrough Carers Partnership is featuring us as a spotlight...

Read more ›

Funding from County Durham Community Foundation

Posted on June 6, 2020

Thank you to the County Durham Community Foundation for awarding us £5,000 to support people living with neurological conditions during the coronavirus pandemic. Report in the Northern Echo

Read more ›

Published research

Posted on June 6, 2020

Our first peer reviewed research publication was published last month in Disability and Rehabilitation. The paper proposes a new framework to support people with the self-management of their neurological conditions.  Our findings showed that there is commonality in the experience of self-management across neurological conditions and we hope the framework will be of use to...

Read more ›